Trusted Reading for Patients & Families
A Note on These Resources
Please remember that these resources are general in nature and are not a substitute for advice specific to your own situation. If anything you read raises a question or concern about your own test results or condition, please raise it directly at your appointment.
Resources and Education
For those with chronic neuromuscular disease and their families, education is an important part of management. The links below are provided for those with a suspected or confirmed neuromuscular disorder who wish to learn more about their condition.
- Muscular Dystrophy QLD
- FSHD Global
- CMT Australia
- Save Our Sons Duchenne Foundation
- MND Queensland
- Myasthenia Gravis Association of Queensland
The American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) has excellent resources on neuromuscular diseases and their diagnosis and treatment.